Today I want to talk about something I really don’t like talking about. I don’t like talking about it because it is embarrassing and frustrating and sometimes scary. See….something is wrong with my body, more specifically, something is wrong with my digestive system, and it’s really starting to affect my life in a very negative way.
I’ve had digestive problems for most of my life, but for the in the past they were pretty mild. By digestive problems I mean gas, bloating, diarrhea, constipation, abdominal pain, urgency, bleeding, and fatigue. It’s all very gross and “TMI”, I know. Over the years the symptoms have come and gone and every time I hope it is the last time, but it always comes back. In fact it’s starting to seem like every time it comes back it is worse.
At this point I am planning my life around access to a bathroom. I don’t like to go do things where I will be away from a toilet for too long. It’s very frustrating to live like this and I hate being in such pain all the time. I want to go to the doctor to finally find out what is wrong with me and figure out how to make it stop so I can live my life like a normal person. The problem is an issue of money. I don’t have insurance right now and I can’t really afford to pay out of pocket for the tests and procedures I am sure I will need. I know my girlfriend is frustrated too. It can’t be easy seeing me live like this.
For now I am just trying to eat a more “bland” diet and be easy on my digestive tract. I am also doing a lot of research and I think what I’m dealing with is some sort of Inflammatory Bowel Disease, like Crohn’s disease or Ulcerative colitis. They sound scary but at this point I don’t care what the diagnosis is, as long as I finally have one. I want the reassurance, the confirmation, that I am not crazy, or lazy, that I have a real problem! That I have a valid reason for not being able to do everything everyone can all the time.
Doing research has also lead me to a few blogs, particularly on Tumblr, by people who suffer from similar problems as me. I was so excited to find other people who understood what it’s like to live their lives around toilets! I told my girlfriend I had found my people! She rolled her eyes but she is happy I found people who understand. Once I get an official diagnosis I will probably connect more with these people but for now it is at least a comfort. I don’t feel so alone or embarrassed, or scared….
Some times I am in so much pain I feel like my insides must be all messed up. I feel like whatever is wrong is going to kill me. Maybe not immediately, although I worry about that too when it gets really, really bad. I mostly worry that my life expectancy is greatly reduced. I assume my body isn’t functioning as efficiently as other’s and it can’t sustain that for very long. I imagine I will die early because I have crappy intestines. No pun intended.
I wrote this for two reasons. For one, I need to get this out. I have no one, besides Chardonnay, to talk to about this and I hate to make her worry so much. Two, I feel the need to join the cause to make things like this less taboo. Just like my post last week on periods this is something that I should feel okay to talk about when I need to. I shouldn’t be afraid or embarrassed to tell people why I can’t do things, why I am tired, and why exactly my stomach hurts, and nobody else going through these things should be embarrassed either!