Hello dear readers! Happy Sunday, welcome, and thank you for stopping by for a bit of coffee and catching up. The weather this weekend has been gloomy, and by now the gloom has worked its way right into my mood. I’m tired, and all I want to do is crawl back into bed with a good book and a hot cup of tea for the rest of the day. BUT the weekend is only so long, and I know that doing nothing at all won’t make me feel much better, so I’m up, I have my smoothie, a cup of cold brew, and you, to cheer me up.
“The morning cup of coffee has an exhilaration about it which the cheering influence of the afternoon or evening cup of tea cannot be expected to reproduce.”
― Oliver Wendell Holmes Sr.
If we were having coffee, I would tell you that yesterday was World Inflammatory Bowel Disease Awareness Day and I celebrated by staying home, resting, and writing. I posted some thoughts on my fight so far with this disease. I tried to convey some of the things that I go through that go deeper than the symptoms and the medication. I tried to help people understand the way it’s affected how I relate to my own body.
Like most things I write here it was written as a reminder to myself, but like all advise we give ourselves, it’s hard to remember and harder to maintain. Just hours after I wrote all that about acceptance and loving myself I had a breakdown. There is so much guilt I have for not being able to be the best me I can not just for me (e.g., not being able to write, to exercise, or go place and do things I enjoy) but for other people too.
It isn’t even the bowel symptoms that are making life so hard! It’s the fatigue and frustration that are forcing me to become so introverted and irritable. I feel myself crawling back inside and away from people, not out of anger but out of exhaustion. I feel bad that I can’t be the sister, daughter, friend, or fiancé that my loved ones need me to be. Of course, they are understanding, but I can see the sadness there. I know that just because I am sick doesn’t mean they stop having needs to and I have no idea how to get back to them.
If we were having coffee, I would tell you that as soon as I begin to see the light at the end of the tunnel, it moves. I’m starting to believe the light is an illusion and to fear that the tunnel goes on and on forever.
This week I was feeling a lot worse and was finally forced to contact my doctor. I was trying so hard to hold on and hang in there until I started my new maintenance medication on Tuesday, but what I was getting so bad I was worried about how much damage I was doing to my body by trying to toughing it out instead of trying something else. So, I called the doctor who then put me back on what I’ve learned is referred to as the “devil’s tic-tacs” in the IBD community, Predisone.
Neither of us wanted me back on that crap. It works miracles, at first, and then it wreaks havoc on the whole body and takes months and months to recover from. But okay, it’s what I need to do, so I felt hopeful I would feel better right away, but she put me on such a small dose it’s made only the smallest dent, enough to keep me working. Then I was hopeful that the new maintenance meds would help right away, but that probably won’t happen either. I’ve gotten so bad that it will be another month or two before I know whether this course of action is right or not.
So, I’ve stopped hoping. Now I’m just hanging in there. I’m going from day-to-day, sometimes hour-to-hour, doing what I can and resting when I must.
If we were having coffee, I would tell you that writing was slow this week. I just couldn’t get my brain to stay on task. It was drawn to scrolling Twitter and commenting on Facebook group posts. I did my best to redirect my attention though by remembering that I had pledged to get back to reading more this week.
My girlfriend surprised me with a bit of spontaneous book shopping this week to cheer me up after all that bad news, and I settled on The Girl With All the Gifts by M.R. Carey, a creepy, heartwarming, and thought-provoking zombie apocalypse story unlike any other. It was the perfect book to get me back into regular reading. Well written, attention-grabbing, and easy to read and follow. I highly recommend it, and the movie too!
This week coming week I’m going back to The Odyssey. I love this book, but I’ve never been able to actually finish it! Too much detail I suppose. My brain just shuts down, and my eyes start to glaze over and close after only a few pages. I end up having to reread so much of it but I’m determined to finish it this year, so I keep plugging away.
If we were having coffee, I would tell you that the coming week is the last of the school year and as you might imagine the atmosphere at work has been tense. There is so much to get done. Graduations, field trips, bidding for summer school routes, bus and equipment cleaning, evaluations, and training. It’s a bittersweet time. We’re saying goodbye to the kids and as relieved and excited as we are we’re all a little sad too.
You get close to these kids, preschoolers and high school seniors alike. Some of my kids are graduating, and some will be moving away over the summer. Even if I get the same route next year, I won’t see them again. Next year new kids will be moving into the district, and many will be moving from elementary to middle school, or middle to high school. There will be new schools opening and routes will be rearranged somewhat and the training department I work for in my off time is moving and hiring new people.
Everything is changing and much of next year is up in the air. I have a little over two months to try not to panic about it.
If we were having coffee, I would tell you that the sun is trying to peek out through the clouds and if I am going to get to spend any time outside of the house this weekend, I had better get up and get going now. I need to look at something other than these walls, hear something besides all the bad news on TV. I need to move my body and be around people. I need to feel that sun and smell the spring air.
I hope you had a productive week and that your weekend has been a relaxing and revitalizing one. If not I hope next week will be better than the last and that you find time to do something just for you before the weekend is over.
Until next time.
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Written for the #WeekendCoffeeShare link-up hosted by Eclectic Alli