Today was infusion day, again. This was the fourth infusion I’ve had of Inflectra for my ulcerative colitis and the good news is it went well. Another milestone reached, another step toward what might be remission, or what might be failure. Day by day, or more accurately, bi-monthly by bi-monthly, infusion by infusion, that is how I am taking things.
I also had an appointment to see my GI doctor and I was thoroughly lectured about how often I contact her, which apparently isn’t nearly enough. I wasn’t helping her to help me. I told her I just felt bad bothering her. I know she has a lot of patients. I know she’s busy and I figure I’m probably fine or that whatever is happening will pass. I’m always wrong.
She said that it’s true, she is very busy, and it was for precisely that reason that I needed to bother her more. She explained she may have 5,000 emails to get through and that if my labs came back good, she may tell me everything was great and move on because she is trying to get to everyone. She said it was up to me to stop her and tell her right away if I was feeling cruddy. It was up to me to say there was more to the story than the numbers.
That really hit me.
When someone is busy, it doesn’t mean they don’t want to know things, or that they want you to suffer in silence. They want you to help them do their jobs well and be better people by speaking up. They may need to be reminded to stop focusing on the details and the numbers and look at the whole picture, the human picture.
They don’t just need your help to help you, they want your help. Help them help you!
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